With much excitement but a little trepidation, Lynn and I returned to church last Sunday. We had not been able to attend there since he started requiring the use of a wheelchair to get around. When he first came home from the hospital in 2010, he was too weak for almost a year; then as his strength improved he started using Rebif and just felt too bad. Finally, he switched to Tecfidera and was strong enough and felt well enough to return to church but then we measured the old elevator and realized he couldn’t get his wheelchair in it and then be able to make the 90o turn to get back out again. So we resigned ourselves to listening to the previous week’s sermon each Sunday morning as our worship participation. Then our prayers were answered and after several years of planning and fundraising, the church has expanded the building and part of that expansion was a wonderful, large, smooth-running elevator!
Another concern was clothing. At home he wears layers due to his difficulty in regulating body temperature. Also, his waistline is impacted by the baclofen pump implant so getting suit pants on was going to be a challenge. Therefore, we had ordered dress pants designed for people who used wheelchairs. The butt is “out” on the pants so that the back is a panel that wraps around and snaps into place. It worked perfectly. They were also light weight but heavy enough for when he felt cool. A pull-over collar shirt completed the outfit. Since our church members usually do not wear suites, he would fit right in.
Continue reading this post at http://multiplesclerosis.net/living-with-ms/just-can-done-doesnt-mean/
It’s certainly not easy, that’s for sure
This shares many of the logistics involved in going someplace, and the emotions experienced along the way. It’s so complicated, isn’t it?!
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