Lynn loves to socialize. He’s much more outgoing than I am and often wants to invite people over; especially family members. However, what I hear when he says so and so is coming over is this: I’ve invited people over who may or may not have been exposed to a cold, flu, norovirus, or any other germs that could make me extremely ill and bring on an exacerbation or deterioration in my condition that could have long term effects. Plus, I will likely spend a lot of energy talking and entertaining which means that what little energy I have will be totally used up and it will take me 2-3 days to recover so be prepared to provide even more care for me than you normally would. In the mean while, I need you to fix a little something for them to eat like maybe a roast, baked potatoes, and some vegetables, while caring for me and trying to work and I would really like the house to look presentable though not necessarily festive. “Really?” I say.
Don’t get me wrong, I also like to see family and friends and I really enjoy our time together but now that Lynn has an autoimmune disease that makes him susceptible to other illnesses, I see socializing in a whole new light. Here’s what I would like to say to our guests (and actually sometimes do).
Read more at: http://multiplesclerosis.net/living-with-ms/we-love-to-see-you-but/
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omg I know exactly what and how you feel My life also… I just wish men would understand their limits and realize how it effect us the caregiver.