I guess most of you who have read my column in the past think I’ve stopped writing. I have to admit that I’ve considered whether I should do that because my time to do anything at all these days is so limited but the publishers of this site are so kind and they have asked me to share my stories whenever I get the opportunity so I’ll keep doing so for as long as I can.
Continue reading at
https://multiplesclerosis.net/caregiver/caregiver-perspective-sorry-havent-been-able-wright-lately/
Hello! My name is Madeline and I work for a consumer insights agency based in Brooklyn, NY. We are currently conducting research on MS caregivers and looking for people who are willing to share their knowledge and insight with us.
If you are an MS caregiver that is interested in the opportunity to participate in a PAID research study, please fill out the form bellow for the opportunity to qualify.
If you do qualify, you will be contacted directly by a recruiter within 1-2 weeks regarding next steps. Thank you for your time and interest! = )
https://docs.google.com/forms/d/1vDZ01LYouvC2sXizzGappDgzPrccy2Or8XnVhE7DVCo/edit#responses
I apologize Madeline for not responding previously. Obviously, I know your research period is over but I was involved for many months in issues with my spouse that would not have allowed me time to participate. I hope you were able to get the people you needed. Best wishes.
Donna, So glad you and Lynn are both okay. I have thought about you so often. I love your honesty about failing the sainthood test, about getting frustrated and over tired.
I just got hit over the head with a double whammy. On top of my very dear man’s secondary progressive MS he has now been diagnosed with moderate to severe dementia. We are lucky because he is the easiest going kindest person I know, but I am now terrified.Thinking it was just “MS cog-fog” was much easier than facing this new challenge. It has become increasingly difficult to have those wonderful talks we have always been able to have. His daughter immediately asked if I was going to put him in a nursing home. I was appalled. When this 73 year old body cannot physically care for him anymore, perhaps we’ll think about it, until then, we are a team – together through this thing called life.
I’m not going to tell you to take care, but do what you can to go easy on you.
I’m so sorry Jan to hear of the new diagnosis. what a punch in the gut! Here’s wishing you good moments every day.
Donna, I’m glad to see you writing but sorry your time is so limited and that you’re not getting enough rest. That worries me, but I guess there’s nothing you can do about it. Take care.
So thankful to read your message.
Always praying for you both.
Donnie is home and doing well. Weak but
improving each day after his pneumonia.
Love,
Teressa