Shared Experiences Library

“MS Caregiver Sharing” Blog Began in 2011

As you look through my shared experiences library, you’ll see that I began writing about becoming a caregiver in 2011.  In the blogs, I honestly shared experiences telling how I felt about the challenges I encountered as a spouse caregiver and the blessings received. In 2013 I was asked to start writing for www.MultipleSclerosis.Net as one of their contributors. I agreed, knowing I could reach more caregivers through their voice and reposting on my website.  Unfortunately, as Lynn’s MS progressed, my writing time became limited, and my contributions significantly decreased. In recent years, my ability to contribute has been rare.

Shared Experiences Library Listing

Below I’ve created a Shared Experiences Library listing everything I’ve written either for MSCaregiving Sharing or MultipleSclerosis.Net.  Topics include insights into emotional and challenges for caregivers and care recipients, difficulties in balancing caregiving and other life expectations, the impact on employment and families, and much more.

Sharing My Experience to Offer Encouragement

I hope by sharing experiences, you may find encouragement and courage to face yours.  Knowing that God was in control of my life gave me the strength to endure no matter what was happening.  He never left me to face anything alone.

Never Alone

I discovered that what the Bible taught was true — God would never leave me to face any challenge alone.  Jesus advised me to live in the moment. He reminded me that worrying about something never changed anything; therefore, I should let tomorrow take care of itself and focus only on today.

One Day at a Time

I admit that I really struggle with that advice. Though I try to face life one day at a time, I must be reminded often not to take on the worries of tomorrow. When I am successful in following that advice, I am less stressed and have more joy. Give it a try.

Shared Experiences Table of Contents

Numbers

9/11 Remembered

9/11 Remembered

9-1-1- Do You Do Catheters?

9-1-1- Do You Do Catheters?

A

A Lifetime of Family Caregiving

A Lifetime of Family Caregiving

A Little to the Left Please

A Little to the Left Please

A Short Trip Back Home

A Short Trip Back Home

Accepting What You Grow Up With

Accepting What You Grow Up With

Adjusting to Being Less then the Best

Adjusting to Being Less then the Best

Adjusting to Disappointment

Adjusting to Disappointment

All He Can Do Is Yell

All He Can Do Is Yell

Am I Competent to Do This Job?

Am I Competent to Do This Job?

An Essential Member of the Healthcare Team

An Essential Member of the Healthcare Team

Answer to Prayer

Answer to Prayer

Arsenic, Mercury, and Lead – What Do They Have to do With MS?

Arsenic, Mercury, and Lead – What do They Have to Do with MS?

Audiobook…Take Me Away

Audiobook…Take Me Away

Awesome New, Patrick!

Awesome News, Patrick!

B

Baptizing Someone Immobile

Baptizing Someone Immobile

Batten Down the Hatches! Snow is Coming

Batten Down the Hatches! Snow is Coming

Being Diagnosed

Being diagnosed

Blessings from Pain

Blessings from Pain

Buying Health

Buying Health

Family Caregiver helping spouse enjoy time with grandchild

C

Call If You Need Anything

Call If You Need Anything

Can He Not Remember or is He Just Not Paying Attention?

Can he not remember or is he just not paying attention?

Can You Come Here a Minute?

Can You Come Here a Minute?

Can You Scratch My Leg?

Can You Scratch My Leg?

Can You Speak?

Can You Speak?

Caregiver or Mom?

Caregiver or Mom?

Caregiving and Work

Caregiving and Work

Caregiving from a Different Perspective

Caregiving From a Different Perspective

Character Flaws

Character Flaws

Cheesecake Makes it All Worthwhile

Cheesecake Makes it All Worthwhile

Children as Caregivers

Children As Caregivers

Choices and Calculated Risk

Choices and Calculated Risk

Christmas Eve

Christmas Eve

Christmas with Family

Christmas with Family

Comfort in the Face of the Earthquake

Comfort in the face of the earthquake

Commitment
Confessions of a Stressed-Out Caregiver

Confessions of a Stressed-Out Caregiver

Connecting with Grandchildren

Connecting with Grandchildren

Could MS Be a Blessing?

Could MS Be a Blessing?

“Cut! Take Two!…”

“Cut! Take Two…”

D

Dealing with Loss

Dealing with Loss

Delirium and UTI’s – What’s the Connection?

Delirium and UTI’s – What’s the Connection?

Depression

Depression

Did You Miss Me?

Did You Miss Me?

Disappointments and Guilt

Disappointments and Guilt

Divine Intervention?

Divine Intervention?

E

F

Family Gatherings

Family Gatherings

Fear of the Future

Fear of the Future

Feeling Alone or Maybe Just Left Out

Feeling Alone or Maybe Just Left Out

Ferritin Deficiency

Ferritin Deficiency 

Financial Support for Home Care

Financial Support for Home Care

Finding the Will to Live

Finding the Will to Live

Finding Time for Normal

Finding Time for Normal

Free to a Good Home…with Patience

Free to a Good Home…with Patience

Frustrations of Dealing with Limitations

Frustrations of Dealing with Limitations

G

Give Me a Hand

Give Me a Hand

Giving the Gift of Receiving

Giving the Gift of Receiving

God’s Blessings

God’s Blessings

Going Out Isn’t Easy

Going Out Isn’t Easy

Going to the Movies

Going to the Movies

Grieving Over Things Lost

Grieving Over Things Lost

Guest Blog

Guest Blog

Guest Blog- Seeing Through the Woulds

Guest Blog- Seeing Through the Woulds by Dan Digmann

Helping Lynn play a game at Christmas with the rest of the family.

H

Handling Grief

Handling Grief

Happy Anniversary

Happy Anniversary

Happy Birthday to Me

Happy Birthday to Me

Has Anyone Seen my Magic Wand?

Has Anyone Seen my Magic Wand?

Hats Off to Special Needs Parents

Hats Off to Special Needs Parents

Hayek Ventilator

Hayek Ventilator

Help with Difficult Conversations

Help with Difficult Conversations

Helpful Resources for Supplies, Equipment or Information

Helpful Resources for Supplies, Equipment or Information

Helping Him Get Comfortable in Bed

Helping Him Get Comfortable in Bed

Helping with Lynn’s Career

Helping with Lynn’s Career

Hey Sweetie! Can You Come Here a Second?

Hey Sweetie! Can You Come Here a Second?

Hold My Hand

Hold My Hand

Holiday Preparations

Holiday Preparations

Home Alone

Home Alone

Hope or Regret: The 4-Wheel Drive Powerchair Debate

Hope or Regret: The 4-Wheel Drive Powerchair Debate

Hope You Enjoyed Thanksgiving

Hope You Enjoyed Thanksgiving

How Am I Thankful? Let Me Count the Ways

How Am I Thankful? Let Me Count the Ways

How Can I Help?

How Can I Help?

How FMLA Supports Caregiving

How FMLA Supports Caregiving

How Others See Me

How Others See Me

Hygiene and Grooming – Sweating the Small Stuff

Hygiene and Grooming – Sweating the Small Stuff

I

I Can’t Just Get Sick

I Can’t Just Get Sick

I Didn’t Say That

I Didn’t Say That

I Don’t Know What I Don’t Know

I Don’t Know What I Don’t Know

I Don’t Want to Be a Man!

I Don’t Want to Be a Man!

I Have the Blues Today

I Have the Blues Today

I Just Can’t Deal With Another Thing

I Just Can’t Deal With Another Thing

I Just Keep Going and Going and Going

I Just Keep Going and Going and Going

“I Know Someone With MS…”

“I Know Someone With MS…”

I Like Ours Better

I Like Ours Better

I So Want a Wheelchair Van

I So Want a Wheelchair Van

I’m No Angel

I’m No Angel

I’m Thankful to God That Jesus Didn’t Quit

I’m Thankful to God That Jesus Didn’t Quit

I’ll Miss You, Patrick

I’ll Miss You, Patrick

I’m the Primary Healthcare Provider

I’m the Primary Healthcare Provider

Impact of Caregiving on Employment

Impact of Caregiving on Employment

Independence Battles Protection

Independence Battles Protection

Is That Your Final Answer?

Is That Your Final Answer?

Is There Really Anything to Being On An MS Diet? We Think so

Is There Really Anything to Being On An MS Diet? We Think so

Is This It? I Thought It Would Be Bigger

Is This It? I Thought It Would Be Bigger

It’s Snowing

It’s Snowing

I’ve Felt Worse

I’ve Felt Worse

J

Joy Comes in the Morning

Joy Comes in the Morning

Just Because It Can Be Done Doesn’t Mean It Should Be

Just Because It Can Be Done Doesn’t Mean It Should Be

Just Say “No”?

Just Say “No”?

Just Sharing

Just Sharing

K

Keeping Up with the Paperwork

Keeping Up with the Paperwork

L

Lack of Sleep. The Root of All Evil?

Lack of Sleep. The Root of All Evil?

Lessons Learned From A Short Trip

Lessons Learned From A Short Trip

Letting Go of Unrealistic Plans

Letting Go of Unrealistic Plans

Life Lessons from Caregiving

Life Lessons from Caregiving

Life’s Precious Balance

Life’s Precious Balance

Like Father Like Son

Like Father Like Son

Live in the Moment

Live in the Moment

Living the Loss

Living the Loss

Loss of Intimacy?

Loss of Intimacy?

Love/Hate Relationship with the Night

Love/Hate Relationship with the Night

Donna and Lynn gazing at each other 2013

M

Managing Caregiver Chaos

Managing Caregiver Chaos

Marriage?

Marriage?

Mental Health Caregiving

Mental Health Caregiving

Moment by Moment

Moment by Moment

MS or Something Else?

MS or Something Else?

Multitasking

Multitasking

My Back Hurts…

My Back Hurts…

My Invisible MS: Support for Caregivers

My Invisible MS: Support for Caregivers

My Mom’s Words are Still True Today

My Mom’s Words are Still True Today

My Role as a Physical Therapist

My Role as a Physical Therapist

N

Necessity is the Mother of Invention

Necessity is the Mother of Invention

New Mysteries All the Time

New Mysteries All the Time

No Time to Care

No Time to Care

Now That You’re Out of Quarantine, Don’t Forget Those Left Behind

Now That You’re Out of Quarantine, Don’t Forget Those Left Behind

Now This is What I Call Accessible

Now This is What I Call Accessible

Lynn wearing neck stabilizer following fall.

O

“Oh, No, Is that a Skin Tear?”

“Oh, No, Is that a Skin Tear?”

One Minute He’s Hot; the Next He’s Cold

One Minute He’s Hot; the Next He’s Cold

P

Pass It On

Pass It On

Pathway to Power (Chair)

Pathway to Power (Chair)

Patient Advocate

Patient Advocate

Planning for the Future with Our Children

Planning for the Future with Our Children

Planning, Time, and Flexibility: Essential Ingredients for the Holidays

Planning, Time, and Flexibility: Essential Ingredients for the Holidays

Plasmapheresis

Plasmapheresis

Please Take the Flu Shot

Please Take the Flu Shot

Prepare to Become a Caregiver

Prepare to Become a Caregiver

Preparing for the Week Ahead

Preparing for the Week Ahead

Protecting Our Home

Protecting Our Home

Put Guilt Back In the Box

Put Guilt Back In the Box

Q

Quite Time

Quite Time

Papa giving Eli a ride on the wheelchair

R

Radical Mobility Let’s Us Down Yet Again

Radical Mobility Let’s Us Down Yet Again

Reaching My Saturation Point-At Least Today

Reaching My Saturation Point-At Least Today

Realities of Life

Realities of Life

Reflections on Caregiving

Reflections on Caregiving

Remember Whose Life You Are Living

Remember Whose Life You Are Living

Retirement to the Rescue

Retirement to the Rescue

Right to Decide

Right to Decide

Rules of Engagement

Rules of Engagement

Rush to RUSH

Rush to RUSH

Donna working from home

S

Second Generation Caregiver

Second Generation Caregiver

Second-Hand MS

Second-Hand MS

See Me Through His Eyes

See Me Through His Eyes

Sharing Germs

Sharing Germs

Short Trip but Major Planning

Short Trip but Major Planning

Shower Day

Shower Day

So Many Choices

So Many Choices

So This Is What a Day of Freedom Feels Like

So This Is What a Day of Freedom Feels Like

So…How are you Really?

So…How are you Really?

Something Has to Be Done

Something Has to Be Done

Something New to Deal With

Something New to Deal With

Something’s Different. Something’s Not Right. Listen to Me.

Something’s Different. Something’s Not Right. Listen to Me.

Sometimes I Feel Like I Will Explode

Sometimes I Feel Like I Will Explode

Sometimes I Get Jealous

Sometimes I Get Jealous

Sometimes, Ya Just Have to Laugh

Sometimes, Ya Just Have to Laugh

Sorry I Haven’t Been Able to Write Lately

Sorry I Haven’t Been Able to Write Lately

Specialization of Medicine – Is That a Good Thing?

Accordion Content

Spring Into Action

Spring Into Action

Stages of Caregiving

Stages of Caregiving

Stages of Grief: Anger

Stages of Grief: Anger

Stages of Loss: Acceptance

Stages of Loss: Acceptance

Standing By His Bed

Standing By His Bed

Starting Down the MS Road

Starting Down the MS Road

Stiff as a Board?

Stiff as a Board?

Struggles with Skin Care

Struggles with Skin Care

Supporting Lynn in His Work

Supporting Lynn in His Work

Switching Gears

Switching Gears

T


Take Care of Myself? LOL

Take Care of Myself? LOL

Tested By Fire

Tested By Fire

Thankful to MS?

Thankful to MS?

Thankful to Be a Caregiver

Thankful to Be a Caregiver

Thanksgiving

Thanksgiving

The Best Laid Plans… Oh, Forget It

The Best Laid Plans… Oh, Forget It

The Blessings of Children

The Blessings of Children

The Caregiver’s Prayer by Kelly Combs

The Caregiver’s Prayer by Kelly Combs

The Challenges of Separation Anxiety

The Challenges of Separation Anxiety

The Healing Touch of a Baby’s Smile

The Healing Touch of a Baby’s Smile

The Impact of Caregiving on the Caregiver

The Impact of Caregiving on the Caregiver

The Importance of Skin Care

The Importance of Skin Care

The Many Faces of Care

The Many Faces of Care

The Need to Feel Productive

The Need to Feel Productive

The Secret Life of a Caregiver

The Secret Life of a Caregiver

The View From Up Here

The View From Up Here

The World Still Doesn’t Understand Disabilities

The World Still Doesn’t Understand Disabilities

There are Worse Things Than MS

There are Worse Things Than MS

There Go the Apples

There Go the Apples

They’re Married and Lynn Was There for It All

They’re Married and Lynn Was There for It All

Things are Improving

Things are Improving

Thinking of Buying 4WD Wheelchair? Don’t Buy from Radical Mobility!

Thinking of Buying 4WD Wheelchair? Don’t Buy from Radical Mobility!

Thus the Week Before Christmas

Thus the Week Before Christmas

Time or Just One Continuous Move Forward?

Time or Just One Continuous Move Forward?

Times Have Changed

Times Have Changed

Training Needed for Caregivers

Training Needed for Caregivers

Transition

Transition

Triumphs and Disappointments

Triumphs and Disappointments

Trying to be All Things at All Times

Trying to be All Things at All Times

U

Understanding How FMLA Can Help

Understanding How FMLA Can Help

Understanding Immunosuppression

Understanding Immunosuppression

Unexpected Sadness

Unexpected Sadness

Update on Ongoing 4WD Wheelchair

Update on Ongoing 4WD Wheelchair

V

Vacationing with MS

Vacationing with MS

Sarah, Lynn, Donna, Mike Bowes

W

Waiting for the Next Shoe to Drop

Waiting for the Next Shoe to Drop

Wanted: Caregiver Ten Hours a Day

Wanted: Caregiver Ten Hours a Day

Warning! I Have a Cold

Warning! I Have a Cold

Was That a Vacation?

Was That a Vacation?

Watch For Breaks in Skin

Watch For Breaks in Skin

Watching, Waiting, Being Strong

Watching, Waiting, Being Strong

We can finally drive the van!

We can finally drive the van!

We Have MS

We Have MS

We Have Our Van!

We Have Our Van!

We Love to See You But…

We Love to See You But...

We Survived Christmas, But Just Barely

We Survived Christmas, But Just Barely

Weathering the Storm

Weathering the Storm

Were You Prepared to Become a Caregiver?

Were You Prepared to Become a Caregiver?

What a Day!

What a Day!

What a Week

What a Week

What Do I Do Now?

What Do I Do Now?

What Do You Feel Guilty About?

What Do You Feel Guilty About?

What Do You See When You See Me?

What Do You See When You See Me?

What Goes In Must Come Out

What Goes In Must Come Out

What Happens When It’s My Turn?

What Happens When It’s My Turn?

What Is a Caregiver?

What Is a Caregiver?

What Resources are Available If I’m Not Around?

What Resources are Available If I’m Not Around?

What’s a Ratchet?

What’s a Ratchet?

When is a Nurse Not a Nurse? When she’s a Family Caregiver.

When is a Nurse Not a Nurse? When she’s a Family Caregiver.

When Is This Going to Go Away?

When Is This Going to Go Away?

When Reality and Dreams Don’t Mix, No One Wins

When Reality and Dreams Don’t Mix, No One Wins

Which Half of the Glass Am I Today?

Which Half of the Glass Am I Today?

Who Am I

Who Am I

Who Can Afford Respite Care?

Who Can Afford Respite Care?

Who Has It Worse?

Who Has It Worse?

Whom Do I Choose?

Whom Do I Choose?

Whose Life is He Living?

Whose Life is He Living?

Whose Life Is This I’m Living?

Whose Life Is This I’m Living?

Why is Getting Help so Hard to Do?

Why is Getting Help so Hard to Do?

Wondering Where This Road will Go?

Wondering Where This Road will Go?

Working From Home

Working From Home

Would Hydrotherapy Be an Option?

Would Hydrotherapy Be an Option?

X-Y-Z