Organizations Supporting Specific Diseases, Conditions, or Causes
Find free care guides, legal checklists, care options and an online community that supports all types of family caregivers.
AARP’s Family Caregiving site provides information, tools and resources to help those caring for a loved one on their journey. Caregiving experts provide information in blogs, webinars and one-on-one interaction through social media channels. The site’s supportive online community can help you connect with others experiencing similar caregiving challenges. Best of all, most of this content is accessible even if you aren’t a member of AARP.
The Alzheimer’s Association provides details on what to expect for each stage of Alzheimer’s disease and other dementias. You can learn about behaviors specific to Alzheimer’s disease, links to local respite care, legal and financial advice, and local caregiver support groups. There is a great caregiver message board, and a pragmatic stress test. Note: this is just one example of a site designed to help caregivers of loved ones with a very specific ailment. Use Google to find caregiving tips for just about any illness impacting the person you are caring for.
Broad spectrum of resources for cancer survivors, including access to oncology social workers, support groups, Connect Education Workshops and financial assistance; please see below for a link to A Helping Hand – CancerCare’s 2018 resource guide for people with cancer
Telephone: 1-800-813-HOPE (4673)
cancercare.orgor A Helping Hand
Facebook for CancerCare
Formerly known as the National Family Caregivers Association, it provides information and education for family caregivers, including a volunteer support network in over 40 states. This site offers practical lists for immediate help with caregiving: patient file checklist, doctors’ office checklist, how to find a support group, medication checklist, independent living assessment and helpful videos. This site is easy to navigate, taking you through step-by-step processes to help get a handle on caregiving.
Caregiver Support Services https://www.caregiversupportservices.com/
Some of you might find that caring for a loved one is a second calling. You are a natural and want to learn more so you take can step up your game even further. Caregiver Support Services supports family and professional caregivers through direct services such as trainings on medication, how to become a personal assistant or a nursing assistant, case management, employee assistance, Alzheimer’s and HIV/AIDS, as well as self-advocacy and other pertinent services. The site includes sections on training, caregiver assessment, and caregiver wellness.
Caregivers Project/Osher Center for Integrative Medicine
Facebook for osher
The Young Adult Cancer Alliance
Facebook for critical mass
Online support for teens with cancer
Live chat available
Facebook for group
Provides information on issues related to hospice and end-of-life care.
Hospice Care and Resources
HFA is a trusted source of information on end of life, hospice care and grief. Throughout this site you will find information about living with advanced life-limiting illness, options for care and helpful resources for caregivers.
Resources for age-appropriate books and examples of discussions to have with children
Facebook for kidskonnected
About Lung Cancer Center
“Lung Cancer Center is your ultimate source for the latest information about lung cancer and related illnesses. Our mission is simple: to connect lung cancer patients and their families with the educational, medical, and legal resources they need.
“Since 2003, our leadership team has strived to provide patients and their families with information and resources to deal with debilitating, asbestos-related diseases. We partner with one of the country’s most experienced lung cancer law firms and have established relationships with some of the nation’s most renowned lung cancer treatment specialists.”
INCLUDES ALL THIS!
- Interactive online calendar
- Reminder emails sent to participant 1 week and also 1 day prior to date
- Organizer email options. Receive alerts when dates are booked or cancelled
- Ability to list meal preferences and allergies
- Digital gift cards for Grubhub, DoorDash, restaurants, and more
- Organizer and Recipient can book dates for others
- Invitations via email, Facebook, Twitter, and more
- Easily share updates and photos with family and friends
- Allow participants to make financial contributions
- Editable at any time by organizer or recipient
The National LGBT Cancer Network
Facebook for cancer network
Rehab Spot helps those struggling with addiction and their families find the information, support, and resources needed to get help.
Survivorship A to Z: Information for Living with Cancer
No Facebook Page