Organizations Supporting Specific Diseases, Conditions, or Causes
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Find free care guides, legal checklists, care options and an online community that supports all types of family caregivers.
https://www.aarp.org/caregiving/
AARP’s Family Caregiving site provides information, tools and resources to help those caring for a loved one on their journey. Caregiving experts provide information in blogs, webinars and one-on-one interaction through social media channels. The site’s supportive online community can help you connect with others experiencing similar caregiving challenges. Best of all, most of this content is accessible even if you aren’t a member of AARP.
Aging Care https://www.agingcare.com/
This site offers caregiving guides, tips, a forum with a robust question and answer section, and assistance on finding care in your local community.
https://www.alz.org/help-support/caregiving
The Alzheimer’s Association provides details on what to expect for each stage of Alzheimer’s disease and other dementias. You can learn about behaviors specific to Alzheimer’s disease, links to local respite care, legal and financial advice, and local caregiver support groups. There is a great caregiver message board, and a pragmatic stress test. Note: this is just one example of a site designed to help caregivers of loved ones with a very specific ailment. Use Google to find caregiving tips for just about any illness impacting the person you are caring for.
American Brain Tumor Association
CarelLine: 1-800-886-ABTA (1-800-866-2282)
abta.org
Facebook for ABTA
American Cancer Society
Telephone: 1-800-227-2345
Live chat available
Facebook for ACS
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CancerCare
Broad spectrum of resources for cancer survivors, including access to oncology social workers, support groups, Connect Education Workshops and financial assistance; please see below for a link to A Helping Hand – CancerCare’s 2018 resource guide for people with cancer
Telephone: 1-800-813-HOPE (4673)
cancercare.orgor A Helping Hand
Facebook for CancerCare
CancerCare for Kids
Online support groups for teens; telephone support for parents nationwide
Telephone: 1-800-813-HOPE ( 1-800-813-4673)
cancercare.org/tagged/children
Facebook for CancerCare
Camp Mak-A-Dream
Located in Montana; cost-free camps for children, teens, young adults and women with cancer, as well as programs for children who have a sibling or parent with cancer
Telephone: 1-406-549-5987
campdream.org
Facebook for camp dream
1-202-454-3970
Formerly known as the National Family Caregivers Association, it provides information and education for family caregivers, including a volunteer support network in over 40 states. This site offers practical lists for immediate help with caregiving: patient file checklist, doctors’ office checklist, how to find a support group, medication checklist, independent living assessment and helpful videos. This site is easy to navigate, taking you through step-by-step processes to help get a handle on caregiving.
Caregivers4Cancer
Telephone: 1-800-787-2840
caregivers4cancer.com
No Facebook page
Caregiver Support Services https://www.caregiversupportservices.com/
Some of you might find that caring for a loved one is a second calling. You are a natural and want to learn more so you take can step up your game even further. Caregiver Support Services supports family and professional caregivers through direct services such as trainings on medication, how to become a personal assistant or a nursing assistant, case management, employee assistance, Alzheimer’s and HIV/AIDS, as well as self-advocacy and other pertinent services. The site includes sections on training, caregiver assessment, and caregiver wellness.
Caregivers Project/Osher Center for Integrative Medicine
Telephone: 1-415-353-7700
osher.ucsf.edu/patient-care/self-care-resources/caregivers
Facebook for osher
Caring.com https://www.caring.com/
This website offers a virtual library of caregiver resources and specializes in reviewing professional senior care resources all over the country, such as: assisted living providers, home health, personal care services, etc.
Colorectal Cancer Alliance
Includes peer-to-peer support via their Buddy Program
Helpline: 1-877-422-2030
ccalliance.org
Facebook for ccalliance
Critical Mass
The Young Adult Cancer Alliance
Telephone: 1-512-553-3556
youngsurvival.org/directory/general-cancer/critical-mass-the-young-adult-cancer-alliance
Facebook for critical mass
Caring Bridge https://www.caringbridge.org/
Sometimes the burden of giving care can be lightened by sharing with others. CaringBridge.org connects families and friends around the person with health issues through free, private websites where users share updates and support.
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Group Loop
Online support for teens with cancer
Telephone: 1-888-793-9355
Live chat available
Facebook for group
Provides information on issues related to hospice and end-of-life care.
Hospice Care and Resources
HFA is a trusted source of information on end of life, hospice care and grief. Throughout this site you will find information about living with advanced life-limiting illness, options for care and helpful resources for caregivers.
800-854-3402
IJ
I Had Cancer
Telephone: N/A
ihadcancer.com
Facebook for i had cancer
Imerman Angels
Telephone: 1-866-IMERMAN (1-866-463-7626)
imermanangels.org
Facebook for imerman
kl
Kids Konnected
Resources for age-appropriate books and examples of discussions to have with children
Telephone: 1-949-484-9092
Facebook for kidskonnected
Leukemia & Lymphoma Society
Includes peer-to-peer support via the Patti Robinson Kaufmann First Connection Program
Telephone: 1-800-955-4572
Weekly online chats available for different diagnoses and for young adults
lls.org
Facebook for LLS
Leukemia & Lymphoma Society: Childhood Blood Cancer
Telephone: 1-800-955-4572
Live chat available
lls.org/childhood-blood-cancer
Facebook for LLS
LIVESTRONG
Telephone: 1-855-220-7777
livestrong.org
Facebook for livestrong
LIVESTRONG Adolescents & Young Adults
LIVESTRONG Adolescents & Young Adults
Telephone: 1-855-220-7777
livestrong.org/we-can-help/young-adults
Facebook for livestrong
Lung Cancer Alliance
Helpline: 1-800-298-2436
lungcanceralliance.org
Facebook for LCA_GO2
About Lung Cancer Center
“Lung Cancer Center is your ultimate source for the latest information about lung cancer and related illnesses. Our mission is simple: to connect lung cancer patients and their families with the educational, medical, and legal resources they need.
“Since 2003, our leadership team has strived to provide patients and their families with information and resources to deal with debilitating, asbestos-related diseases. We partner with one of the country’s most experienced lung cancer law firms and have established relationships with some of the nation’s most renowned lung cancer treatment specialists.”
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INCLUDES ALL THIS!
- Interactive online calendar
- Reminder emails sent to participant 1 week and also 1 day prior to date
- Organizer email options. Receive alerts when dates are booked or cancelled
- Ability to list meal preferences and allergies
- Digital gift cards for Grubhub, DoorDash, restaurants, and more
- Organizer and Recipient can book dates for others
- Invitations via email, Facebook, Twitter, and more
- Easily share updates and photos with family and friends
- Allow participants to make financial contributions
- Editable at any time by organizer or recipient
My Cancer Circle: Power of Community (powered by Lotsa Helping Hands)
Telephone: N/A
mycancercircle.lotsahelpinghands.com
Facebook for helping hands
NO
The National Children’s Cancer Society
Telephone: 1-314-241-1600 (the Society requests contact via various e-mails listed on website)
thenccs.org
Facebook for the NCCS
The National LGBT Cancer Network
Telephone: 1-212-675-2633
Facebook for cancer network
Provides information on how to find pharmaceutical assistance programs
1-800-503-6897
OncoLink.org
Website of the University of Pennsylvania Cancer Center which serves as an educational site for patients and families providing information at various levels
Telephone: 1-215-349-8895 (for Partnership information only; education questions via e-mail)
oncolink.org
Facebook for oncolink
Oral Cancer Foundation
Telephone: 1-949-723-4400
oralcancerfoundation.org
Facebook for OCF
Ovarian Cancer Research Alliance
Telephone: 1-866-399-6262
ocrahope.org/patients/peer-support-woman-to-woman
Facebook for OCRFA
PQ
Prostate Cancer Foundation
Telephone: 1-800-757-CURE (1-800-757-2873)
pcf.org
Facebook for PCF
RS
https://www.rehabspot.com/alcohol/who-alcoholism-affects/seniors/
Rehab Spot helps those struggling with addiction and their families find the information, support, and resources needed to get help.
Ronald McDonald House Charities
1-630-623-7048
Keeping families with sick children together and near the care and resources they need.
The SAMFund
For young survivors, as they move forward and recover from the financial impact of cancer treatment
Telephone: 1-617-938-3484
thesamfund.org
Facebook for SAMFund
Stupid Cancer
Telephone: 1-212-619-1040
stupidcancer.org
Facebook for stupid cancer
SuperSibs!
Telephone: Alex’s Lemonade Stand Foundation @ 1-866-333-1213
alexslemonade.org/campaign/supersibs
Facebook for alex’s lemonade
Survivorship A to Z: Information for Living with Cancer
Telephone: 1-212-586-5600
survivorshipatoz.org/cancer
No Facebook Page
Susan G. Komen for the Cure
Komen Breast Care Helpline: 1-877- GO KOMEN (1-877-465-6636)
komen.org/BreastCancer/SupportIntroduction.html
Facebook for komen
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Take Them A Meal
Telephone: N/A
takethemameal.com
Facebook for meal
Triage Cancer
Telephone: 1-424-258-4NAV (1-424-258-4628)
triagecancer.org
Facebook for triage cancer
UV
Ulman Foundation
Among other services, the Ulman Foundation offers a printed, comprehensive resource guide entitled, NO WAYIT CAN’T BE!
Telephone: 1-888-393-FUND (3863)
ulmanfoundation.org
Facebook for ulman
wxyz
Young Survival Coalition
Dedicated to issues unique to young women with breast cancer
Telephone: 1-877-972-1011
youngsurvival.org
Facebook for YSC
Dedicated to issues unique to young women with breast cancer
Telephone: 1-877-972-1011
youngsurvival.org
Facebook for YSC