Caregiver Burnout Recognized as National Health Crisis
Caregiving is a physically and emotionally draining job. After performing caregiving duties daily for an extended time, the impact of that strain begins to take a toll on both your physical and mental health. Research by organizations such as Centers for Medical Services (CMS), Centers for Disease Control (CDC), National Alliance for Caregiving (NAC), and the American Association of Retired People (AARP) all show that caregivers are at risk for developing adverse conditions as a result of the support they provide to others.
Impact of Caregiving on Health
The Caregiver Action Network statistics show the following impact of caregiving on the health of the caregiver:
- 23% report their health is fair or poor as a result of caring for a family member
- 72% report not going to the doctor as they should instead of caring for someone else
- 20% of employed female caregivers over age 50 report symptoms of depression
- 40-70 % if family caregiver show clinical signs of significant depression with 25% of those meeting the criteria of major depression (possibly suicidal)
- 1:10 (11%) of family caregivers report that caregiving caused their health to deteriorate
- A caregiver wife’s hospitalization increases her husband’s risk of dying to 35% within one month of that hospitalization. If the husband is the hospitalized caregiver, the risk for his wife’s death is 44% within the month of his admission.
- The extreme stress of family caregiving takes approximately ten years off the life expectancy of caregivers due to premature aging.
Statistics from: https://www.caregiveraction.org/resources/caregiver-statistics
Often caregivers develop chronic health conditions that become disabling, as well. High blood pressure, diabetes, high cholesterol levels all come about due to poor eating habits, high stress, and lack of sleep. Family members who spend nine or more hours per day in caregiving activities double their risk of heart disease. As the family caregiver ages, so increases the risk of early mortality for the caregiver. As more and more of the health care burden is shifting to care at home, the impact on family caregivers is becoming a healthcare crisis.
What Are Signs That You are Developing Caregiver Burnout?
Caregivers suffer from two syndromes that indicate they need some personal attention. One is called “Compassion Fatigue” and the other “Caregiver Burnout.” I like word pictures, so here’s one for you. Think of a boat. You have a caregiver who is running full throttle hitting waves head-on, staying the course for hours on end without taking time for himself protecting his shoreline. In his mind, if his boat stops, the enemy will breach his coastline and enter his home; therefore, he cannot quit. He runs out of gas, but he must defend his coast! Consequently, he picks up the oars and paddles harder and faster until more gas arrives. More gas comes, and he gets to rest, but only a short while, and it happens again.
Compassion Fatigue First
The pattern of rest and pushing ahead creates more significant stress leading to Compassion Fatigue. The caregiver begins to be less tolerant of others, feels disconnected, becomes annoyed more easily, has increased low self-esteem, and less compassion. Unless he takes a break and recognizes his need to get away for a while, his emotional state will progress to Caregiver Burnout.
If he ignores the warning signs and keeps peddling or he drops his oars and loses them in the water, he then reaches the point of Caregiver Burnout, where he begins to attempt to protect his shoreline by peddling the water with his arms alone. He is so exhausted, he has little left to give, but he keeps giving anyway. Common signs of caregiver stress include:
- Anxiety, depression, irritability
- Feeling tired and run down
- Difficulty sleeping
- Overreacting to a minor nuisance
- New or worsening health problems
- Trouble concentrating
- Feeling increasingly resentful
- Drinking, smoking, or eating more
- Neglecting responsibilities
- Cutting back on leisure activities
Followed by Caregiver Burnout symptoms:
- Having much less energy than before
- Catch every virus that comes along
- Feeling exhausted even after sleeping all night or taking a break
- Neglecting your own needs because you’re too busy or don’t care anymore
- Your life revolves entirely around the person needing care by you receive no satisfaction from providing the care
- Have trouble relaxing even if help is available
- Become increasing impatient and irritable with the person for whom you’re caring
- Feel hopeless and helpless
How Can you Reduce Your Risk of Caregiver Fatigue and Burnout?
- Recognize the signs, and when you do, ask for help from those around you. The support you need is a chance to get away from caregiving as the “Lone Ranger” for a while. Therefore, try to get away for a day or two or at least to share your burden with someone else.
- If you find that you feel resentment, seek someone to meet with for counseling. Professional counseling may be useful but may not be essential. Sometimes all you need is a trusted friend with whom you can share your feeling without fear of judgment. Often, making peace with your situation goes a long way in resolving the stress and burnout symptoms that plague your mental health.
- Get some fresh air and exercise. I’m not talking about an exercise program unless you want to do one because many of us don’t have the time to commit to anything formal but instead break the exercise down into 5-10-minute segments that you enjoy. Turn the radio up while doing the dishes and dance around, “pump-iron” with your clothes as you fold them, buy an electronic peddler to use periodically while you sit at your desk, and feed your special needs child. Be creative and come up with an activity you like to do and turn it into an exercise routine. Take it outside, and you get to add Vit. D, and Vit. C to the mix.
- Monitor your own health needs. Keep up with your annual health and dental appointments, eat a well-balanced diet, and drink plenty of water. Try to get enough sleep that you feel refreshed in the morning, but if you can’t, then try to take a nap during the day. Even brief naps of 20-30 minutes are restorative.
- Learn to accept help. I had a tough time accepting offers of help, but I came to realize that when I denied people the opportunity to help, I was taking away their joy. People feel good when they help. When I deny them the ability to help me, I’m taking away their opportunity to feel good. Once I realized my mistake, it was a little easier to allow them to help.
- Focus on what you can control. Do you know the Serenity Prayer? “God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” Remember, you can’t control everything. Pray for the wisdom to know the difference and to let go of what you can’t change.
If you can put these practices into action daily, you’ll find that it will be much easier to avoid burnout.
Caregiver Burnout - A Personal Experience
By Donna Steigleder
I’m going to be brutally honest with you as I tell my story. I went from a nice person everyone liked to someone I didn’t even like due to burnout. Pay Attention so it doesn’t happen to YOU.
I Love My Husband But I’m Tired
I love my husband, but caregiving will wear you out if you’re not careful. I tried for years to do it on my own. I worked full-time and was a full-time caregiver using friends to cover for me when I when into work for many years. I did all my husband’s physical care before I left for work or after I came home. My friends only had to feed him and help him with his typing during the day (he’s an author). I put an indwelling catheter in him that they had to empty that I removed each afternoon to reduce the amount of time it remained in his bladder. Thus, we cut his risk of bladder and kidney infections successfully (he only acquired one bladder infection in five years while I was doing this process).
Did I Mention I Was Tired?
I worked outside the home for 10 hours. Once home, I took over caregiving duties and house responsibilities, leaving only 5 hours to sleep at most. Many nights I got up at least once to catheterize Lynn during those five hours. I was always tired, always sleepy, always merely putting one foot in front of the other to keep going.
I felt guilty about everything. Guilty that I couldn’t give enough time to Lynn, to my job, to my children, or my elderly parents. I was working myself to death doing my best all the time, but too little of me was left at the end of the day to go around just wasn’t enough of me to go around, not enough hours in the day.
I Cried Often
I cried often going home, in the shower, anywhere I could be alone because I didn’t want Lynn to know how I felt. He couldn’t help the situation we were facing.
We couldn’t get paid help because we made too much money and if we hired someone to help, we wouldn’t have enough money to pay our bills. I thought about quitting my job, but if I did that, then I would not have health insurance (this was before the Affordable Care Act), so I keep going it alone. I felt like I carried a heavyweight around all the time.
I used to look happy and smiled a lot but started looking depressed and down. No one talked to me about it other than to say, “Are you okay?” Some did suggest that I see someone, but I honestly could not figure out how I could go about doing that safely. Where would I find the time? I was afraid to take time from work and possibly lose my job; I needed the income. I was scared to death all the time. I needed someone to take the lead for me at that time to help me get care. So, I did nothing.
Wanted to be Alone
Instead, I alienated everyone. I was short-tempered and frustrated. I self-isolated because I didn’t want to be around anyone else. With so much to do, I told myself that I couldn’t spend time with anyone else, so I only spent time either working or caregiving and never allowed time for myself. I pushed everyone away—my friends, my coworkers, my colleagues, my family.
By the time I retired, I doubt that many realized I had left. I no longer had close contacts. Where once I was well known, now even many in my own department didn’t know me and I had acquired a reputation as being terse and not a willing team player. My failure to participate in group gathering and my direct responses lead to a reputation as one who was controlling and inflexible.