Sharing my Experiences as a Caregiver
Began MSCaregiverSharing Blog in 2011
I started writing about being a caregiver in 2011. Over the years, I shared many heart-felt, emotional descriptions of the challenges I encountered as a spouse caregiver, and the blessings I received. I decided to share those blog archives with you because I believe they provide insight into the emotional adjustment that occurs as someone becomes a caregiver. As I shared my journey, I held nothing back; therefore, the stories provide a first-hand view of how I felt in those moments-warts and all.
Hardest Job I Ever Had
I hope my experiences encourage you to keep putting one foot in front of the other each day. Yes, being a caregiver is the hardest job I’ve ever had, but by taking life one day at a time and trying not to look any further than the day I’m currently living, I’m making it.
God in Control – Always
I know God is still in control of my life, and He’s got my back. He helps me through all the struggles and gives us both the strength we need to endure. Though He doesn’t take away our challenges, He faithfully provides for our needs each time. Lynn is in good health for a disabled, chronically ill person, and we’re each other’s best friends. So, you see, this family caregiving thing can succeed.
Baptizing Someone Immobile At Home What’s the Process to Baptism is a Christian sacrament marked by ritual use of water and admitting the recipient to the Christian community. An act by which one is purified, sanctified, initiated, or named Someone Immobile at Home? Last year, my husband asked me to help him arrange a baptism ceremony at our home. Though baptized as a child, he wanted to supplement his childhood understanding with a reaffirmation of adult faith. Lynn has
Now That You’re Out of Quarantine, Don’t Forget Thos Left Behind Quarantine is Over Daily, the news carries reports of another state entering Phase One of returning to normal following the massive shut-down of the country to protect the vulnerable population from the Coronavirus. At this point, I think most,
Caregivers never take a break because though they may not be physically present, mentally, they do not let go of their responsibilities. Relaxation is extremely difficult for a lifetime family caregiver because being “on” and ready to respond in an instant is a part of their innermost being. They do not have an off switch.
Children as Caregivers Since multiple sclerosis often strikes in early adulthood, many times, the family unit includes children who mature into adulthood, watching their parents become progressively weakened by the disease. Such was the case in our family. Lynn had a ten-year-old son who lived with his ex-wife when we married in 1997.
I’ve been struggling since December 26 with being both the caregiver and needing care myself. I don’t usually get sick because I’m cautious regarding exposure to contagious situations. For example, I screen those who come to our home both for their symptoms and their possible exposure to others, and I do
Once upon a time, the world was a different place in America. Sons and daughters grew up and married and lived in or close to the same neighborhoods where their parents, aunts, uncles, and grandparents lived. Neighbors knew neighbors. Couples got together with friends on Saturday night, and children grew
Did you know that delirium was a symptom of a urinary tract infection? Neither did I, but it’s something I’m learning to recognize. Apparently, I’m not the only one who has experienced its impact because there was an article on the phenomenon in one of my nursing magazines last month. My
Hats Off to Special Needs Parents I want to shout out today to special-needs parents. God bless them; they have their hands full, and their energy tanks empty most of the time. These caregivers play a dual role as both parent and caregiver. In that role, they are often criticized
Since I’ve retired, I’ve found myself on a mission to do something about the plight of caregivers. Why am I so stirred up? It’s because there is a severe lack of training for family caregivers. The lack of training is especially true in rural areas where families are expected to perform
My current project is gathering information to write a book on skincare and wound management. Therefore, wound and skincare are on my mind. One of the most important practices I have is to check my husband’s skin regularly for any signs of skin breakdown. If I see the first hint
Today, or maybe yesterday, is the official launch of my website. I launched it by creating a Facebook page to start getting the word out about Becoming A Family CaregiverA person who provides needed help to someone of any age who is ill or injured and unable to care for
Caregiving is a very lonely responsibility. If you have ever been a caregiver, you understand what I mean. All caregivers have probably experienced that feeling of being alone when the smoke clears. The initial burst of enthusiastic help is over. Everyone has returned to their normal lives except you. As the dust settles
Lynn’s story began when he was a young teen. His father, who was a carpenter, experienced difficulty walking. His diagnosis of multiple sclerosis came soon afterward. His life and that of his family changed dramatically with his diagnosis because at that time no treatments were available for MS. Lynn remembers
Hi, my name is Donna. I’m the wife of a Multiple Sclerosis patient, Lynn, diagnosed in 2006. MSCaregiverSharing, my original blog site, was dedicated to telling the story of how I adapted to being both a caregiver and spouse to someone with multiple sclerosis. As part of that story; however, the
BLOG LIBRARY MY CAREGIVING JOURNEY I first became a caregiver raising a child with special needs. That marriage became a statistic of caregiving marriages and ended in divorce. I remarried a few years later to a man supportive of my role of caregiver. It was ironic in a way because,
I am concerned that the specialization of medicine is leading to a decrease in the quality of care available rather than an increase. I have seen this more and more over the past several months as my husband has had a series of mystifying medical conditions requiring different “specialties” to determine the underlying cause.
How prepared were you when you first became a caregiver?
Did you Know what todo, where to go, what the medical terms being used even meant?
Did you know how and when to switch between the role of spouse/child/sibling/friend/parent/partner and caregiver?
If you are like most caregivers, you probably didn’t. Most of us didn’t plan on becoming caregivers. We acquired the role because “something” happened to someone we cared about or had the responsibility to protect. We did not apply for the job. It did not matter if we had prior training, had any competency or skill in knowing what to do. In some cases, it didn’t even matter if we wanted to do the job since we were obligated under a court-appointed mandate. We had the responsibility to be the caregiver, training or not, to care for and protect, this person placed under our responsibility. How could someone help but feel overwhelmed and uncertain in that situation?
How many times a day does your MS patient call you for help? If I have slept the night before I tolerate it pretty well. If I haven’t, then I do a lot of mumbling when I get the “call.” I admit I get frustrated a lot. I have to remind him often that I’m at work and need to get back to my desk. The interruptions cause me to regularly work till after 9 pm trying to get in a full day. I’m very fortunate that I have that flexibility. I’m sure many of you do not. My heart goes out to you because it’s a terrible conflict to have to decide which need to serve–caring for your spouse or bringing in the money to care for you both. The reality is you have to work to eat, but it’s hard to manage it all.
Ever since Lynn almost had to go on a ventilator in May, in the back of my mind I wonder what to expect about the future. I seriously try to just look at what today holds for me but whenever plans need to be made, I can’t help but worry. I can’t share this with Lynn. If I do he thinks I’m being pessimistic and that I don’t think things will turn out well. It makes him depressed because he thinks I think he’s not going to get any better… so I can’t talk to him about my fears…but they are there.
First off let me say that I would not wish MS on anyone. Nor do I believe that God gives people MS either as a blessing or a curse; MS, like all diseases, is a consequence of a fallen world and Adam and Eve’s free choice to disobey God. That said, I believe God can use the hard times in our lives to strengthen and bless us.
I must admit that I don’t particularly appreciate it when someone tells me that “God doesn’t give us anything we can’t handle.” Most of the time, I want to respond that His idea of what I can handle and mine are world’s apart, but I have to admit that for the most part, that saying is true. Or maybe it’s not. What I have found is that God doesn’t expect me to handle it alone.