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2011 Blog Posts

Christmas Eve

It’s 12:12 a.m. Christmas Eve.  In a few hours I’ll be back up getting ready for my kids to come over for our Christmas Eve time together.  I love having them come over but as with all things, MS gets in the way it seems. I had a call from my son earlier saying he feels stuffy so he might not come for dinner Christmas Eve night because he doesn’t want to expose Lynn to anything.  All our family is very thoughtful regarding exposing him to anything. They know how fragile his health is and how difficult it is for him to recover. But I really want my son to come.  It just won’t be Christmas if  all the kids can’t be here. Lynn has felt miserable all day.  He’s been very testy

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Family Gatherings

This past weekend, my parents and siblings as well as our children and theirs, came to our house to celebrate Christmas.  It was a wonderful time; lots of laughing and sharing…as well as good food.  We rarely get to see most of them since Lynn has become wheelchair dependent so these times together are especially precious.  Changing where and how you do things is one of the adjustments that comes with being a caregiver. Since most homes are not designed for access and steps or narrow doors make it difficult to negotiate around most homes, the places a wheelchair dependent person can go are rather limited. The result is that you either become isolated from your former friends and family or you open your open to them coming to you. 

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Christmas with Family

  My Mom and Dad arrived today in anticipation of our family get together at our house on Saturday with my family and my brothers and their families.  Everyone comes to our house now because Lynn’s powerchair and other equipment do not fit as well into a home that is not equipped for them.  For years we all traveled to Franklin County located at the foothills of the Blue Ridge Mountains.  I really miss seeing those mountains with the snow caps through our kitchen window each morning.  Richmond has hills but those Blue Ridge Mountains are awesome with snow on them.  Every once in a while there would even be snow at my parent’s house when we went and that really made it feel like Christmas. My brothers and parents are the

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Ferritin Deficiency

  When Lynn went to the doctor last week, several blood tests were done to find out why he is feeling so tired and run down.  We got the results yesterday and was very surprised to find out that his hemoglobin was greatly improved (now 14) as were his other lab values.  For the most part, everything was within range of what it could be and still be normal.  So why does he feel so awful? I think he has ferritin deficiency. What’s that you say? Ferritin is a protein produced by the body to store iron. When there is insufficient iron in the blood, the body uses the iron stored in ferritin. Once the iron levels in the body improve, ferritin will again begin to store iron but there needs

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Whose life is he living?

Last night I talked about the fact that I felt that I was not living my own life and that I was lost in the caregiving role.  Tonight I want to explore the other side–his side.  Lynn sits up at night to sleep so that he will not wake me up to put him on his peddler when his legs get stiff.  He has given up sleeping in a soft bed until he can create a device that will keep his legs moving at night.  Therefore, when he wakes up he decides if he needs to be cathed or if it’s just stiffness that caused him to awaken. I’m sure he looks over at me sleeping comfortably in the bed under my covers and tries to delay waking me as long

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Whose life is this I'm living?

Have you ever wondered whose life it is you are living?  Sometimes I wonder if I exist anymore. Some days it seems that I only exist to be Lynn’s assistant.  I do not have a life of my own anymore.  Sometimes I try to have one but when I do, I just become frustrated with trying so I try not to try.  I also wonder who would I be if I was not providing care to Lynn? When you are a caregiver, your entire life is wrapped around the person for whom you are caring. You decide what time you have to get up in the morning based on what you have to do for your loved one.  Here’s how today went for example.  I wanted to attend a meeting today,

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We can finally drive the van!

  After paying the owner the sales price of the van on Nov. 18, we finally have tags and can drive it as of December 3.  This entire experience has been one of frustration and endurance from the beginning but it’s over now, and we have the freedom provided by a wheelchair van.  Today, after breakfast, I got Lynn dressed, put him in his powerchair, and he drove himself out the door and into the passenger side of the van.  After figuring out how to use the straps to secure the wheelchair to the floor, we were on our way and for the first time in over two years, Lynn actually went into a store and bought something for himself.  What freedom that is!  I no longer have to be

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MS or something else?

Every time Lynn goes through a spell of feeling bad, I wonder, “Is this MS or something else?”  MS is so sneaky.  It affects so many components of the body and mimics so many other things that it’s not always easy to tell. Like now.  Something is wrong with Lynn. He associates it with when he got his flu shot at the end of October and it’s true that taking a vaccine often does trigger a reaction in MS patients.  As their body attempts to make antibodies against whatever is being introduced, the autoimmune response is often triggered and the body feels the effects of the war.  But it usually doesn’t last this long…. If you recall,  a few blogs back I mentioned his hemoglobin report came back low.  I have

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Who Has It Worse?

When I run into coworkers, friends, family, people from church, etc., I can see in their eyes that they feel sorry for me.  Many say, “I don’t know how you do it, day in and day out. I don’t think I could.” I don’t feel comfortable when someone tells me that.  I don’t feel like I need anyone’s pity or that we are a tragic couple.  I know that our lives are really quite good.  We get along very well.  We have wonderful family members both close by and far away who constantly support us and give us encouragement.  We have a church family that really walks the talk that Jesus proclaimed while he walked the earth.  I work for a compassionate supervisor in a job that is challenging and rewarding. 

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Thanksgiving

Last year on this date, Lynn was in the intensive care unit of the Medical College of Virginia Hospitals (MCV).  By today’s date, he had been in the hospital since November 6 and would remain in the hospital another two weeks. During that time I stayed with him 24-hours a day.  I slept in a reclining chair at his side and was up every few hours helping to make him comfortable.  He does not remember much of that time and what he does remember is clouded by the hallucinations he was having so at times he cannot be sure what was real and what was not; but I remember every bit of it. I remember having my step-son stay with him while I went to work to teach a class 1/2 day

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We Have Our Van!

Finally after two long weeks of going back and forth and back and forth with the loan  agent, we got approved for the full van loan. As the person who sold us the van said, “I’ve bought houses in less time than it’s taking to get this loan approved!”  If the seller and I had not continuously pushed things to move along and offered assistance, I might still be waiting on the van. I finally called a dealer and pleaded that they send the retail value for a conversion kit to the loan officer and it finally went through.  Then they even agreed that the van value was more than what was being asked!  Go figure. I can’t say enough nice things about the seller though.  What an angel.  He was

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Perserverance

Perserverance…that’s what it takes when you are a caregiver.  If at first you don’t succeed, just keep trying till you worry them to death or  you have Devine intervention… We got approved for the patient lift! Through the support of Lynn’s Physical Rehab doctor and my diligence in getting the insurance company the information they needed promptly, we got approved.  The letter the doctor wrote was awesome (as is the doctor who wrote it).  The letter went in last Friday and Sunday night the rep called to say we had been approved for the lift.  It’s coming this Friday.  It will allow me to lift and position Lynn with minimal effort.  It also has a scale device so I can watch his weight and it can be used to move

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The world still doesn't understand disabilities

  Would you believe I still don’t have the loan settled for our van?  I know God will provide and this van will be ours but it has been so very frustrating dealing with the loan company this week.  Here’s the issue: The seller is asking about $7000 more than the blue book value for a 2005 Uplander.  The loan company’s policy is that they will not loan more than 125% of the blue book value.  Can you figure out why there’s a difference in price?  Of course!  It’s a wheelchair converted van! Duh!  It’s not a regular van that is equivalent to the basic 2005 Uplander blue book value.  It’s a van that has had $20,000+ of work done to it so that someone in a wheelchair can use

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Answer to Prayer

  I have often mentioned in my posts that God takes care of us and that our church is an ongoing support group for us.  I want to share with you how I know prayers are answered.  If you follow my blog you know that several weeks ago I wrote a blog about how much I needed a conversion van.  Lifting Lynn in and out of our Impala is extremely difficult and there have been many times that I only managed to move him safely with God’s help through prayer.  I had received a lot of encouragement to look into purchasing a van.  As you know, there are really no resources for getting a handicap accessible vehicle.  There are some scholarships or discounts but the cost of converting a van

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Lord, please…

Over the past week, my concern has grown.  I walk into the room and see him sitting there.  His eyes are shaded in pain–not severe pain–more of an aching discomfort due to the broken skin on his coccyx. We’ve tried several types of patches to protect the area but one of them slide and broke the skin.  Then it happened again and more skin was torn.  Now he has an area that’s draining and sore on a place he has to sit all the time.  He can’t be comfortable in bed.  He has to sit up and peddle to relieve the stiffness.  He tries to lie in bed but he just can’t tolerate that for very long. Please don’t let this be the beginning of a difficult to heal bedsore (or

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Adjusting to being less than the best

I received my annual performance review today.  I had mentally prepared myself for getting a rating less than what I usually get and was even afraid it might be significantly less but I was pleased…and disappointed…and sad…and concerned.  Not to brag but I’m very good at my job.  Several years ago I was nominated and received the Employee of the Year award.  We had about 7000 employees then so that was a real honor.  Every year for at least the last ten, if not longer, I’ve gotten an exceptional overall rating.  This year I didn’t.  It was still good, better than just proficient, and even still had some exceptional ratings listed, but it was sad to see my performance decline in writing. Don’t get me wrong.  I’m not complaining at

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Please take the flu shot

We made arrangements for our home health nurse to give Lynn the flu shottoday.  I expect he will feel pretty rough tomorrow and maybe Sunday too because anytime he gets a vaccine or a change in medications or has to adjust to just about anything different, it knocks the wind out of him.  It used to be that I took the flu vaccine for my job and because I hate getting sick.  Now I take it for Lynn.  Whenever I go out, I’m paranoid if someone sneezes around me or I over hear someone saying they are sick.  When you’re a well person, getting sick is an inconvenience.  Sure, we all hate the aches and pains and don’t even mention throwing up!  But when you’re disabled a simple cold can have

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Disappointments and Guilt

This week has had several disappointments.  On Thursday and Friday, I was scheduled to take a course in Critical Incident Stress Management for my job.  I was really looking forward to it not only for the new information and skills but also for the opportunity to be back with coworkers and others for the day.  I got up at 5 a.m. and got Lynn and myself ready for the day.  I had a friend coming to stay with him from 9-2:30.  All was going well at first and then his stomach started grumbling.  Not a good sign.  I went on to the class with the hope that it would settle down.  At 3:40, I got a call to come home.  That was the end of my two-day training program.  Friday,

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Happy Anniversary

On October 11, 1997, Lynn and I got married.  As I stood at the entrance to the sanctuary, with my ten-year old escort (my son), my soon to be husband, was playing his guitar and singing me a song that he wrote just for our wedding.  The theme of the song was, “you’re my best friend.”  How true that was to become. As I stood there listening, my son kept saying, “you’re not going to cry, are you mama?”  I didn’t.  I was just amazed at his ability to sing to me when I knew how sentimental he was.  He’s much more sentimental than I am.  I’m a realist.  He’s a softy.  Thinking back to those days, I thought our greatest challenge would be blending the two families and it

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What a day!

I have had a terrible day, and it’s all due to having to get a new modem to my computer.  I truly believe computers can either be your best friend or your worst nightmare, and since about Wednesday; I’ve had it up to my eyeballs in frustration with them. First, on Tuesday, I lost the internet.  I HAVE to have the internet because that’s how I connect to work.  I called tech support and spent over an hour, trying to figure out what was wrong.  They decided it was my modem and said they would have to send me one.  I was really upset.  If I can’t work from home, I have to go to work.  Who was going to stay with Lynn if I went in?  If I didn’t

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My back hurts…

Actually, it’s my side.  I tried a patient lift, but it didn’t work with Lynn’s wheelchair.  I know the one that I would like to get–it’s a modified version of what we used in the hospital–but it’s over $3000 because it’s not provided by our insurance company.  So I lift Lynn myself.  He now weighs 215 lbs.  That’s a lot to lift.  I’m no small person either. I weigh about 180 lbs, which is probably part of the problem.  If I were in shape and lost about 50 lbs., I would have more energy and more flexibility, however; as my doctor explained, losing weight is difficult when you’re under a lot of stress.  My body thinks it needs to store fat so that I’ll have the necessary energy to fight off what’s

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Helping with Lynn’s Career

As I mentioned in the page called, “Lynn’s story,” he soon became unable to work in his chosen profession as a carpenter after he was diagnosed with MS.  He was in his 40’s at the time and wanted very much to continue to work.  However, his physical limitations and his fatigue made working in a physically demanding job impossible. So he looked for other options and discovered he had a talent for writing. Lynn has written three books and is on his fourth.  Only one has been published so far, Rising Tide.  His publisher did a great job of supporting him during the editing and publication process; however, they do not do a great deal of marketing the book after it is released. They sent out the initial press release and then sent him information

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Please participate in this survey related to Caregiver Needs

I received this email request from the Southeastern Institute of Research asking me to post a link to a survey they are conducting along with the National MS Society  and the National Alliance for Caregiving related to the needs of caregivers.  The study is investigating issues related to caring for someone with MS and the needs of family and friend caregivers.   The survey takes approximately 20 minutes to complete and is completely anonymous and confidential. No one will ever ask for your name or contact information.  Responses will be combined with those of other caregivers and will be shared with the National Alliance of Caregiving and the MS Society so that they can learn how to better meet the needs of those caring for people with MS.  I hope you will consider

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Shower Day

For most people, a shower is just a routine part of their day.  It takes no more preparation than making sure you have shampoo and soap and clothes to put on afterward.  Not so, if the person who needs a shower is in a wheelchair and cannot help themselves. When I first started bathing Lynn, I had a shower seat I put in the tube.  I lifted him onto the bench, shifted his legs over the edge of the container, and used a hand-held spray for bathing him.  Reaching over the side of the tub was difficult, and we were both soaked by the end of the bath.   My back also was usually aching by then too. We choose this method because it was the only room I could get a

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Switching Gears

One of the challenges I face as a caregiver is switching gears in mid-thought.  Of course, being a mother certainly helped prepare me for that duty but I always switch reluctantly.  I’m the type of person who likes closure.  I like to start a project, focus on it, get it done.  Not being able to finish something frustrates me considerably.  Needless to say, I’m frustrated a lot. I work from home as I’ve mentioned many times before.  After I get Lynn and myself ready for the day, I “go to work” at my computer.  I have a job that takes a lot of concentration so when I’m working on a document or trying to advise someone over the phone, it’s difficult when my concentration is broken.  I’ve become pretty good

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Things are improving…

I try to be thankful for any positive changes.  Sometimes I almost forget that but I try to remember each night when I say my prayers, to say, “thank you,” for all the good things that happened that day, even if the good thing is that nothing bad happened. Although Lynn has not been feeling well since this week’s full moon made him feel all achy, we’ve been seeing improvements. First off, he’s been getting hot and hasn’t had to wear extra layers as much.  We suspected the iron he was taking was helping him and sure enough, we got his lab work back this week.  His hemoglobin had risen from 8 to 12 in just one month!  That’s awesome!  He’s still low but low normal now.  His iron levels are still too low (he’s 33

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9/11 Remembered

Who doesn’t remember where they were and what they were doing on Sept. 11, 2001? I’m sure every one of adult years who still has the capability to remember the past can tell you a story about how that day affected their lives forever. Watching the programs today, several thoughts came to mind. 1.  So much has changed – both in America and in our home.  Ten years ago, all three children were still dependent on us.  Now they are on their own and come help us out.  Lynn was working full-time and MS was yet to invade our lives. However, like a terrorist cell planning, waiting, and taking action, MS was already there doing its damage.  Where in 2001 Lynn was so active he hardly had time to rest; now, any significant

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Can he not remember or is he just not paying attention?

Lynn has the most awesome memory of anyone I’ve ever known.  He is the one you always want on your team for any trivia game.  He remembers every little detail about any movie he has ever watched, can tell you what year and the date something happened, and if you think you’re right and he’s wrong about something that happened… give it up, he’s always right. For those of you who might not be familiar with MS medical assessments, one of the tests they have you take is a memory test.  It’s horrible, and when I listen in, I always give up after about the third set of numbers.  There’s a man’s voice that calls out numbers and what you have to do is add the first two numbers and get

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I so want a wheelchair van!

When we went on vacation, I rented a wheelchair van thanks to the generous gift of one of our church members.  IT WAS AWESOME!  I was so spoiled by that van. Lynn and I have a 2002 Impala.  When we go somewhere, I bodily list my 190 lbs husband from his wheelchair and set him into the car seat.  He cannot help very much with this process and what makes matters worse is that the way the passenger door opens, I have to swing his hind parts in toward me and then back into the seat.  Some days I barely have the energy to do that without dropping him–especially when he’s wiped out at the end of a long doctor’s appointment or isn’t feeling well.  Ever tried to lift and

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What a week….

Things are pretty much back to normal following Hurricane Irene.  I understand that there is another possible hurricane heading toward the Carolinas so we may have more to come. We got our power back at midnight, Wednesday morning.  We were very fortunate because my son didn’t get his till the next day and one of our friends didn’t get hers till the day following that! When the power came on, I actually shouted for joy…then I immediately started cleaning… the bathrooms, the dishes, …it was 3:00 a.m. before I went to bed.  The next day it was a shower for Lynn, then me, then more clothes to wash.  I think I finally felt like we were back to normal around Friday (though it still looks pretty trashy outside). This weekend, as

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Weathering the storm

Hurricane Irene has moved on now and we fared pretty well.  We lost electricity at 2 pm on Saturday and we still don’t have it back here at 5:30 p.m. p.m. on Sunday.  Our yard is a mess and we’ve lost everything in our refrigerator but I think the freezer food for the most part is okay.  We have a generator running a small air conditioning unit and a friend brought us another one for the freezer which also allowed me to hook up a TV and the computer. Lynn is feeling really bad though.  Low pressure systems really hurt him.  He feels like he’s been run over by a truck.  He’s also emotionally hurting.  He’s been on the verge of tears all day because I’m having to do everything

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I have the blues today

I don’t know why.  But I’m feeling blue. Maybe the atmospheric pressure is playing a role since we are waiting for  the hurricane to roll in tomorrow night.  I think it’s primarily due to lack of sleep and trying to get away today. I worked till 10 last night and then Lynn wanted to lie down for a nap.  I put him to bed and had so much I needed to do that I let him sleep from 10:30 till 12:30.  I know that was a mistake and I knew it when I was doing it but I needed some uninterrupted time to finish what I was working on.  (Plus we spilled some urine on his seat cushion and I wanted to get his favorite socks, leg warmers and the

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Comfort in the face of the earthquake

I’ve never experienced an earthquake before.  It was a really eerie feeling to have the air and ground moving around me. I was working at my desk and Lynn was working in the back room at his computer when it started.  At first I just thought it was dynamite being used to get rid of stumps or someone doing construction but it went on way too long for that.  I knew fairly quickly it must be an earthquake and became sure when it didn’t stop. I admit I was spooked.  I wondered if things were going to start falling (i.e., trees, shelves, whatever).  I quickly looked outside for falling trees (we live in the woods) and was relieved to see none; then I yelled for Lynn.  “Are you okay back

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Necessity is the Mother of Invention

I’ve discovered that buying things to make life easier for a caregiver gets expensive; however, with just a bit of creativity, you can have devices to help out that work almost as well for a lot less (other than the time it takes to make them).  Lynn has been a carpenter, is very creative and has come up with a bunch of things to help him exercise.  I’ve been able to look at magazines and come up with ideas also.  For example: Don’t like covers on your feet?  Lynn doesn’t either.  What did we do?  Took PVC pipe and glued straight pieces and curved joints so that it sits on the floor and rises above the bed height high enough to keep the covers off Lynn’s feet.  Pipes fit under

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Love/Hate Relationship with the Night

I’ve always loved to sleep.  I don’t nap during the day, but if I had my preference I would go to bed between 10 and 11 p.m. and not get up again till 9:00 a.m.  A good night’s sleep for me is 9 hours. During that time I might get up once to go to the bathroom but most of the time I would spend in slumber.  I also love after a good night’s sleep to slowly come awake–stretch a bit, and allow myself to fully come awake. I can’t remember when I last had a “good night’s sleep” based on the description above. I long to go to bed (which is the “love” part of the relationship) but I hate how often I have to get up at night.  A typical night

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I Just Can’t Deal With Another Thing.

Ever felt like you just couldn’t take one more demand on your energy?  I was like that last Monday night.  We got home from vacation Saturday and I stayed up till 3 a.m. putting things away.  Sunday was much of the same except it was catching up on things at home. Again I went to bed at 3 a.m. and Lynn was up several times so even though I didn’t start my day till 10 a.m., I was very tired on Monday.  Monday was back to work.  I work from home so after getting up late, fixing breakfast, getting us both dressed and fed, settling him down on his peddlar because his legs were spasming, I didn’t get to sit at my computer till around noon.  However, I had already

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Triumphs and Disappointments

We are on our last day of vacation, and as usual, I think everyone is looking forward to going home–although we have had a great time. There is no place like home, is there? For instance…I helped Lynn take a shower yesterday in a regular shower stall.  I put in the shower chair for him to sit on and then stood outside the shower to bathe him.  Water everywhere, of course!  No room to move him. Had to have his son help me get him out.  Lynn and I were both exhausted, but the mission was accomplished.  I am sooo looking forward to our own shower unit that was installed by our church so I could roll him in and out. Our own bed…that will be nice too.  Appliances that

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Vacationing with MS

We are on vacation.   It’s so nice to be away from home, with the sound of the beach in the background and our children around us but unlike the days before MS, vacationing with MS is not a relaxing experience. First is packing to go…I had to pack his cool vest, his exercise equipment for balancing, his Hayek vent, his peddler, medications, two power chairs (one is a 4-wheel drive for the beach), one manual wheelchair, a shower chair, nebulizer, catheterization supplies, and then the regular things you take with you. I rented a wheelchair van this year because Lynn’s leg spasms are so bad I was afraid he would have a set-back if he had spasms all the way to the beach.  The van allowed him to sit in

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We have MS

You will notice as I write these blogs that I always talk about “we”–  “we were in the hospital,” “we are learning to live with xxx.”  I don’t mean to minimize that Lynn is the one with MS and he is the one who ultimately has to deal with the frustrations, pain, discomfort and significant changes in his life, but he was not diagnosed with MS alone, WE were.  What happens to him happens to me.  When he can’t move, I move for him.  When he needs information, I get it.  If he needs equipment, I find a way to get it.  If he gets upset, I deal with the emotions.  If he wants to get from point A to point B, I get him there.  So Lynn is not the

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Like father like son

Lynn’s son might have MS.  He is still going through testing and if he has it, it’s very early in the disease process.  Lynn’s father had MS, then Lynn, and now his son.  When Lynn was first diagnosed we were told it was not a genetic driven condition but there might be a predisposition to it.  Well, based on this family’s history, I’m inclined to think heredity plays a big factor. We have shared information with Lynn’s son about signs and treatment as we have learned about them.  He and his fiance have also researched it a lot so they decided to go to a new doctor and get a complete physical just in case.  He was seeing the same doctor that missed Lynn’s diagnosis and when vision pain started

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Hayek Ventilator

In late May 2011, Lynn became very sleepy.  He was so tired he could hardly stay out of bed.  I listened to his lungs, and they sounded very noisy in some areas and almost no movement in others.  His home health nurse thought we should go to the ED, and finally, even he agreed.  We went in on Friday, and he entered the Neuroscience ICU immediately.  On Saturday, his blood gases were so bad that had his gases not improved within a particular 30 minute period, they were going to intubate him and put him on a ventilator.  They warned me that if that happened, he might not be able to come off because his lungs had gotten very weak. That was the first time that I actually got scared about the

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Plasmapheresis

I am so excited.  Lynn was able to type using both hands yesterday!  He hasn’t been able to do that in months. He also was testing out whether he could hold a fishing rod and he was not only able to hold it but to reel it as well.  He hasn’t been able to fish, which he dearly loves to do, in a couple of years.  For the first time, we have hope of improvement, and it’s all thanks to plasmapheresis. Lynn was in the hospital in May with respiratory depression.  A week after his discharge, he noticed a significant decrease in movement and concluded he was having an exacerbation.  Since he got steroids while he was in the hospital trying to improve his breathing, his doctor did not want to

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Stiff as a Board?

All my life, I have heard people say something was as “stiff as a board,” but it wasn’t until Lynn started struggling with MS that the phrase took on a literal meaning to me.  I had also heard of spasticity, but I had no idea just what that could mean.  Early on, Lynn started struggling with spasticity (or a better description would be spastic paralysis).  His legs would suddenly become so stiff that even if I used every ounce of strength I had, I almost could not get his leg to bend.  It was the spasticity that finally made him stop driving.  His leg would not bend so that he could brake or accelerate!  Sometimes the spasticity would last a few minutes, but gradually it became a constant thing. In addition to the

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Wondering where this road will go

Ever make plans for the future that didn’t quite turn out as you had hoped?  Yeah, who hasn’t.  That’s how MS affects my life.  We make plans and then he has a new struggle to deal with and the plans we had, take a back seat. This is a second marriage for Lynn and me.  When we got married, I had two children and he had one whom he had with him intermittently.  He had a log cabin with two bedrooms; I had a house with three and a foundation for a fourth.  Therefore, we moved into my house.  Lynn is a carpenter by trade and had built his log cabin. Therefore, we decided to buy land and build our own home, literally.  Lynn designed the house, sent the plans

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Starting Down the MS Road

I knew very little about MS when Lynn was diagnosed.  I knew that it was a nerve condition and that it was often first diagnosed due to vision impairment.  I also knew that it affected a person’s ability to walk.  However, I knew very little detail about it–like there were four types.  So my first way of coping was by reading.  I love to read.  If I’m sitting still, I have to be reading whatever is around me (unless I’m watching TV of course). I have found that the more I know, the better I can cope with what is going to happen not so with Lynn.  I was looking up everything I could find on the internet and reading all the information we were given by the doctor. He

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Being diagnosed

My spouse was diagnosed with MS in the fall of 2006. Since that time, the journey we have taken has been a whirlwind of change and adjustment. Realistically, I believe he had MS for many years before he was diagnosed. The signs were there–dragging foot, progressing to leg weakness, and then difficulty standing straight when he was tired.

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